Monday, March 18, 2013

She's Happy!

In a world of MRI's, blood draws, and the constant worry of "what if's"...There is little to smile about.  But over the last few weekends, we have had a visitor staying with us, who has brought more than smiles to Bailey's face....He has brought a sense of hope!

"Everyone's always taking care of ME....Now I have someone to take care..."

But even though Bailey IS taking care of Fergus....Fergus is keeping a close eye on Bailey as well.  He follows her around the house making sure everything is okay.  They take care of each other!

In fact...Fergus has brought smiles to EVERYONE in the house--Even occasionally Rich. :)

We are excited to finish the process of adopting our service dog and can't wait to see the relationship between Bailey and her new best friend grow!

Thank You Freedom Service Dogs!

Wednesday, March 13, 2013

Neurofibromatosis Awareness Bracelets!

These will be ONE INCH BLACK bracelets with the above lettering!

Order to the left
USA Orders only (for now)
Sometimes I get scared of what could be-

I worry about the tumors and how they affect me.

But no matter how sad or scared I get-

I smile always and never quit!
-Kristi Hopkins

Wednesday, March 6, 2013

The Littlest Tumor Foundation

you and me

"The Littlest Tumor Foundation is a nonprofit organization dedicated to finding a preventative therapy and treatment for tumor growth in children and providing wellness scholarships to families dealing with Neurofibromatosis (NF)."

I am a BIG pusher and lover of fund raising...And when you mix that with Neurofibromatosis, I couldn't help but promote this GREAT event coming up!

If you live near Appleton Wisconsin...Or even if you are willing to drive -- You won't want to miss this!

Get the family and friends out for a fun-filled run for a great cause! Join the Littlest Tumor Foundation (LTF) for their annual “sam i am”... tumors i do not like them-- 5 mile timed run and 2.5/5 mile walk. There are kid’s fun runs that will kick it all off, great prizes and much, much more!! 

WHEN:  MAY 25th 2013

WHERE:  Plamann Park-  Appleton Wisconsin

Please click the following link to sign up!


The registration and shirt pick-up will begin at 7 a.m. under the Plamann Pavilion. Runners won’t just get our regular coveted t-shirts this year, we have upgraded to DRY WICK SHIRTS! The children’s fun run race will start at 8 a.m. followed by our national anthem. At 8:30 a.m. the five mile timed race and walk will begin. All of the top runners in each of the age categories will receive a unique, hand-crafted medal. And don’t forget to fund-raise!  

Our top fundraiser will receive our sought after Sami cup! Start collecting those pledges now because for every $100 in pledges you have collected, your name will go into a drawing for some great prizes. These range from a great Wisconsin Dells getaway vacation to a pop-up camper family trip and so much more!

Go to to learn more about the “sam i am” ...tumors i do not like them race to register online. 

Won’t you help us? For more information about the Littlest Tumor Foundation please call (920) 475-6599 or visit our website. We believe that everyone can contribute a little to finding a cure for NF. 

Our message is simple: tumors in children, we do not like them!