tag:blogger.com,1999:blog-6432747512136647685.post176910419317376663..comments2024-03-21T20:44:46.883-06:00Comments on Thriving with Neurofibromatosis: Whew. It's been a WHILE!NF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6432747512136647685.post-62220633513985399292017-11-26T10:12:48.202-07:002017-11-26T10:12:48.202-07:00Sadly issues like getting legitimatly disabled peo...Sadly issues like getting legitimatly disabled people SSI benefits, like your son with NF are yet another thing ignored by the mainstream "disabled rights" organizations. All they focus on is "bullying" and use of the "R" word. And it seems those same organizations think certain disabilities are better than others examples like their obsessive focus on Down's syndrome and wheelchairs ignoring other disabiltiies like NF and blindness. I fought for my SSDI benefits for 2 years and was approved in 2011 with a private lawyer.Williehttps://www.blogger.com/profile/09102475138868536204noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-81193285049302583792017-09-25T14:04:51.506-06:002017-09-25T14:04:51.506-06:00Kristi - I'm sorry to hear about your current ...Kristi - I'm sorry to hear about your current hardship. I'm sure 2017 has been nothing shy of challenging. Sending thoughts and prayers. I had a question on an older post. If you have some time, I can be reached at virgilnci(@)gmail.com. God bless, VAnonymoushttps://www.blogger.com/profile/14500732381282689400noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-26040147154071766802017-08-24T08:41:43.353-06:002017-08-24T08:41:43.353-06:00You claimed two of your children have high functio...You claimed two of your children have high functioning autism in the past well use that as the main disability qualifier. Did you think about a lawyer?! I got Bill Latour's law firm to help me with my SSDI case.Willnoreply@blogger.com