tag:blogger.com,1999:blog-6432747512136647685.post5067190670461783366..comments2024-03-21T20:44:46.883-06:00Comments on Thriving with Neurofibromatosis: Life Gone...But Not Forgotten!NF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6432747512136647685.post-50998860465407600262012-04-07T21:59:36.824-06:002012-04-07T21:59:36.824-06:00WFORD... Suspicion says this was a sudden annueris...WFORD... Suspicion says this was a sudden annuerism. Unsure if this was even related to NF at all.Ms. Kissyhttps://www.blogger.com/profile/18208533697775623138noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-84594512925306042662012-04-04T20:51:29.928-06:002012-04-04T20:51:29.928-06:00I do mean to be nosy but did she die of a neurosar...I do mean to be nosy but did she die of a neurosarcoma a plexiform gone bad? My dad died of lung cancer but had nf at age 63 seven years short of life expectancy. It is sad this women died In what looks like her late 30's or early 40's. I just hope the plexi on my face never goes crazy. Any way sorry for your loss.W fordnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-61606039971477786292012-04-03T20:46:49.481-06:002012-04-03T20:46:49.481-06:00Kristi
That was beautiful love the site you have c...Kristi<br />That was beautiful love the site you have crated!<br />God Bless Kambi!<br />I am here for you!<br />Thriving NF1 and a son w/ NF1,<br />ChrissyChristine Triolinoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-37324770927053444162012-04-03T20:32:21.660-06:002012-04-03T20:32:21.660-06:00Kristi,
That was so beautiful! God Bless! I am her...Kristi,<br />That was so beautiful! God Bless! I am here for you!<br />Chrissy<br />Thriving with NF1 and an awsome son with NF1 too!Christine Triolinoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-20702567398903264512012-04-03T11:16:49.735-06:002012-04-03T11:16:49.735-06:00The words will come when they are ready, Kristi. T...The words will come when they are ready, Kristi. Take care. <3DBatehttps://www.blogger.com/profile/15804688621324509438noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-21499203771550946842012-04-03T08:53:46.829-06:002012-04-03T08:53:46.829-06:00I was born with nf and i would like to talk to ppl...I was born with nf and i would like to talk to ppl that have it also and now that i have found this blog i hope to make some new friends . i thought that i was a lone and never knew that there were more ppl out there with nf and i am now 31. and i realize that i have been like this my whole life i still never let it stop me. i lost my left leg below the knee due to nf when i was 4 years old. i am so proud of all those that have also made it through the struggles of nf. i know how hard it can be. if u would like to get to know me . please add me on facebook. charityannwing@yahoo.comcharityannwinghttps://www.blogger.com/profile/05693115341520625377noreply@blogger.com