tag:blogger.com,1999:blog-6432747512136647685.post6199650700556272405..comments2024-03-21T20:44:46.883-06:00Comments on Thriving with Neurofibromatosis: Tumor TalkNF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6432747512136647685.post-6196463249200082172012-01-11T20:22:42.052-07:002012-01-11T20:22:42.052-07:00W Ford ... Proteus affects the bones, not the oute...W Ford ... Proteus affects the bones, not the outer skin. The woman in the article has a severe form of Neurofibromatosis....Not Proteus.Ms. Kissyhttps://www.blogger.com/profile/18208533697775623138noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-91372703695214111452012-01-11T17:02:25.502-07:002012-01-11T17:02:25.502-07:00I would agree with the other poster, I am only sli...I would agree with the other poster, I am only slightly deformed by my nf and not this bad. But still I bet a million this person has another disease I addition to nf like the so called elephant man who was mainly deformed due to proteus a very rare disease and not nf which he also had barley.W fordnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-47326562469112339732012-01-10T22:47:30.628-07:002012-01-10T22:47:30.628-07:00Make me rethink how blessed I realy am. Sure I hav...Make me rethink how blessed I realy am. Sure I have tumors, sure sometimes I'm embarsed about them, yes there's one that needs to be removed but nothing like those women. Thank you for posting this to give me a better perspective on a day when I was a bit down about my NF.Katiehttps://www.blogger.com/profile/16695528789213788862noreply@blogger.com