tag:blogger.com,1999:blog-6432747512136647685.post8376982179018223187..comments2024-03-21T20:44:46.883-06:00Comments on Thriving with Neurofibromatosis: Glomus Tumors! Ouch!NF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6432747512136647685.post-86851426236143853942017-11-08T09:36:26.768-07:002017-11-08T09:36:26.768-07:00They just don't know or believe how bad the pa...They just don't know or believe how bad the pain is.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-4739877255787029612017-07-04T15:49:24.675-06:002017-07-04T15:49:24.675-06:00I am in the same position. Worst pain ever. I am s...I am in the same position. Worst pain ever. I am so careful with my fingers. I dread knocking them, it just hurts so much. The slightest bit of cold weather and i am miserable. I have nf1, which is getting progressive worse as I get older but this is by far the worse part of it. I can just about cope with lumps and bumps. Anyway, after years of going to see my G.P. I have finally been referred for surgery for removal of suspected glomous tumours....hooray.Sunnyhttps://www.blogger.com/profile/17075287650580005206noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-89433005171683961812017-06-15T14:29:57.382-06:002017-06-15T14:29:57.382-06:00This comment has been removed by the author.Sunnyhttps://www.blogger.com/profile/17075287650580005206noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-74020616667144928472016-05-11T14:00:06.229-06:002016-05-11T14:00:06.229-06:00could they tell before they removed it that it was...could they tell before they removed it that it was a glomus tumor I have been hurting for 9 years no one will help...I have nf1 but never any problems related to it the mri show a growth but still no one will help they don't believe how excruciating the pain is<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-14712160822704624102015-04-18T09:52:36.465-06:002015-04-18T09:52:36.465-06:00I had a glomus tumour removed about a year ago, th...I had a glomus tumour removed about a year ago, the surgeon said he had not seen one for 10 years it is very rare he gave me a photo. The pain returned after about 6 months its horrendous. I went back and he said it is rare for it to recur so sent me to the pain clinic, I have had two nerve block injections and he said he would do an MRI. The result came back yesterday and guess what? Another glomous tumour, it feels like someone hitting it with a hammer, it is in my thumb. Nothing works for the pain so I will be glad to get more surgery. Thanks for this article I am posting it on the NF sites in FB. <br />Pam Austinnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-53587827079246180392014-07-17T00:59:01.468-06:002014-07-17T00:59:01.468-06:00Good post.
finger painGood post.<br /><a href="www.finger-weights.com" rel="nofollow">finger pain</a>Anonymoushttps://www.blogger.com/profile/14163050092364259868noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-42990689995812514872014-07-17T00:57:26.195-06:002014-07-17T00:57:26.195-06:00Nice post.
finger painNice post.<br /><a href="www.finger-weights.com" rel="nofollow">finger pain</a>Anonymoushttps://www.blogger.com/profile/14163050092364259868noreply@blogger.com