tag:blogger.com,1999:blog-6432747512136647685.post9211161802736045651..comments2023-10-31T06:06:18.413-06:00Comments on Thriving with Neurofibromatosis: Brain Tumors!NF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6432747512136647685.post-45336168770219729302013-05-07T00:05:20.168-06:002013-05-07T00:05:20.168-06:00I have NF1, I am 32, and was kept in the dark abou...I have NF1, I am 32, and was kept in the dark about my condition till I was about 21-22. I was told that they were flesh moles for the first 2/3 of my life. While I am thankful that I do not have any of those large tumors that hang from a person's trunk like squash, I feel it is unfair for my family to expect me to just get over it. If my mother or father had educated and prepared me for the life ahead, fine, but only though my own observation and later research did I notice the number of tumors on my torso and arms increasing. Despite my best efforts I have been perpetually single all my life. Maybe one day I will meet a woman who can see past this. Should I tell my family to stuff it, because they have no concept of the ostracization I have endured and still endure? The random looks and missed job opportunities are the worst. Sometimes I feel like I am paying for somebody else's sins as I am the only person in my family with the disease. Happy NF/Brain Tumor Month by the way, this blog is somewhat inspirational.Dave Godbout like whathttps://www.blogger.com/profile/17140292153577804439noreply@blogger.com