Rachel is my 7 yr old fiesty ball of emotion. She was diagnosed with Neurofibromatosis type 1, about 6 months after birth. I recognized it, ...

We were prepared for this doctors visit! We knew what to ask, and how to ask it. We were NOT leaving without knowing exactly where we stood...

Yesterday we got something pretty amazing in the mail....and a wish was granted! Bailey held the big box in her hands and was sooo excited ...

I'm mentally and physically exhausted. I'm scared about the upcoming Neurosurgeon appnt. I miss holding someone at night. (kids ar...

My son usually comes home from school with a pocketful of "something" as a gift for me. He runs off the bus, greeting me with a s...