The other night during bathtime, Rachel looks down at her belly and asked me, "Why do I got these brown marks all over me?" I sm...

Last week was filled with many doctors appointments for Bailey.... We asked lots of questions and got lots of answers. An NF team came in t...

Bailey is so excited for her very first trip to the CTF camp! She leaves on Saturday, and has actually been packed and ready, for over a w...

This is a big day for all of us....Neurofibromatosis is going to be met head-on today. Bailey has been telling me about this sharp - shootin...

STRENGTH by Sylvia Kelly It takes strength to be certain, It take courage to have doubts. It takes strength to fit in, and cour...