I haven't written much about Rachel lately...mostly because her symptoms have remained stable. She is a healthy thriving child, who has...

"I hate school Mom, PLEASE don't send me back there!" This was the text I got from my daughter this morning. It's the ...

As long as I can remember, I have had pain. I remember one time when I was 8 yrs old. I was in 3rd grade and fell out of my chair. The chil...

I met someone today who has Neurofibromatosis . It was a weird, yet familiar feeling. Like meeting up with someone you haven...

I woke up early this morning, to try to avoid the hustle and bustle of the first day of school. The alarm went off and I rubbed my eyes. ...