One of the most powerful things most people want in their lives, is control.  When we don't have the control, I know for me, the tension...

"Why do you have those bumpies on you mama?" My 8 year old daughter wraps her arms around me.  "'Cuz I have Neur...

The pain is unmistakable!  People who suffer with Neurofibromatosis, who also complain of pain in their fingertips,  seek answers to ques...

This morning, my oldest daughter started High School. I watched as she headed into the GINORMOUS building. She looked so small walking t...