Today is Rare Disease Day!   My goal is to continue to make more videos about what it's like living with Neurofibromatosis. Why n...

Letting Go How do you become a positive person? Are people born this way? If not, how does one become positive and inspiring? I us...

Broomfield mom-daughter duo a model of positivity They hope their way of dealing with incurable condition will help others cope By Joe...

I spent the morning going over old posts from the last 2 years.  Gosh I can't believe how far we have come....And how far we have yet to...

These Tags were created by Kambi Kohnen.  What a GREAT way to  show your support for Neurofibromatosis!  A portion of all sales will b...