I have done a lot of reading (especially lately) and seen articles that refer to Neurofibromatosis as a "Rare Disease"....But....

My FIRST thought, when I was asked to join a kickboxing class was that my tumors were too noticeable...What if I get out there, and s...

I sat there....Biting my nails, looking down at my phone...Playing my hundredth game of Candy Crush (trying to look "busy"...) ...

It's the night before 'The BIG Day'....And I am texting my daughter, who is laying in bed scared.  I've gone to her, tr...