Two down -- More to come... Today I used my web cam on my computer....Not liking it at all!  Not sure what's up with the lagging and...

2015 has gotten off to a very busy start....I have so many goals for this year!  One of those goals is to get myself out speaking about Ne...

I was asked by a mother, who is dealing with a new diagnosis of NF for her young son, what a life with NF looks like...And how we manag...

I am finding that living in the world of "STABLE" is hard.  ALMOST as hard as living in the world, where we saw the doctor ev...