tag:blogger.com,1999:blog-6432747512136647685.post6238126894459128154..comments2024-03-21T20:44:46.883-06:00Comments on Thriving with Neurofibromatosis: Marijuana NF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-6432747512136647685.post-15825798753728325112019-12-11T22:41:14.591-07:002019-12-11T22:41:14.591-07:00Yes I have neurofibromatosis type 1 I be in so muc...Yes I have neurofibromatosis type 1 I be in so much pain pills make me feel sick marijuana is the only thing that can help me I'm currently going through my treatment trying to get me a card money been so hard to come by life it's self is hard living with NF noone to help me I definitely need help Anonymoushttps://www.blogger.com/profile/09785917297087032865noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-26367073821837231062018-02-22T06:34:58.180-07:002018-02-22T06:34:58.180-07:00Thanks for the valuable information and insights y...Thanks for the valuable information and insights you have so provided here... <a href="http://www.topdogcbd.com/uncategorized/what-are-some-of-the-benefits-of-cannabidiol-cbd" rel="nofollow">click here</a><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-50204075944614814362018-01-03T12:13:12.208-07:002018-01-03T12:13:12.208-07:00My name is Lissette in 24 and I was born with nf1 ...My name is Lissette in 24 and I was born with nf1 as I got older a plexiform spine tumer nf1 stared to grow between my spine and growing in to the pelvic it causes pain so I can sleep on my back and my pelvic area is also in pain because the tumor I'm just kind of trying to find how to get prescribed medical marijuana I've been smoking marijuana since I was about 15 years oldAnonymoushttps://www.blogger.com/profile/00865914912412265415noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-50545921320601305962016-06-22T05:10:30.127-06:002016-06-22T05:10:30.127-06:00I hope everyone finds relief from medical cannabis...I hope everyone finds relief from medical cannabis.I'm 44 yrs old and was diagnosed at 6 months of age with nerofibromatosis and had countless surgeries. I'm tired after the lifetime fight. I want medical cannabis in TN for all of us suffering.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-79343077135820659552016-06-22T05:08:26.347-06:002016-06-22T05:08:26.347-06:00I hope everyone finds relief from medical cannabis...I hope everyone finds relief from medical cannabis.I'm 44 yrs old and was diagnosed at 6 months of age with nerofibromatosis and had countless surgeries. I'm tired after the lifetime fight. I want medical cannabis in TN for all of us suffering.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-19989967791911895992016-06-03T02:39:56.365-06:002016-06-03T02:39:56.365-06:00After reading all you guys remarks it makes me fel...After reading all you guys remarks it makes me fell like I have hope. I'm 33 and just got dismiss for the nursing program for have 35 ng/ml is my system. I have NF 1. I have nodules from head to toe. Had I known that it would of showed up in could of did a different measure. If any one could help me debate why it stayed in my body systems after 30 days please help. My email address is midgettelashodna@gmail.com Anonymoushttps://www.blogger.com/profile/11297455125817792271noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-51625759957567217742015-12-21T12:16:27.060-07:002015-12-21T12:16:27.060-07:00I have NF1. I use it once or twice a week.
It...I have NF1. I use it once or twice a week. <br /><br />It's not legal in my state. I believe they've decriminalized it so as long as you don't have too much on you, it's just a fine and a misdemeanor. Like a scarlet letter traffic ticket. <br /><br />Luckily I don't feel too much pain from NF1. I use it because I'm an emotional wreck. The pot helps with that immensely. "don't worry, about a thing......"<br /><br />It is a much better alternative than drinking. No hangovers. It doesn't dehydrate me as much. I sleep tons better. I wake up feeling awesome after smoking. Refreshed, clear headed and ready to start the day. Even when I'm high I have much more clarity than I would have if I were drinking.<br /><br />Sleep is another plus. Usually when I go to sleep drunk, I wake up feeling unmistakably worse than I did when I went to sleep. Physically and emotionally. Luman Waltershttps://www.blogger.com/profile/16959454545226808901noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-72174121090275685022015-08-30T20:34:52.891-06:002015-08-30T20:34:52.891-06:00Hey Brenda I have NF1 i use medical cannabis and i...Hey Brenda I have NF1 i use medical cannabis and it helps me immensely... I have paid from my tumors and it helps with the pain....it does also slow the growth of tumors and depending on certain ways you use it..it can shrink them... I have some that grow and show on the outside of my body and used oils and they have shrank in size... It's not true that it makes you stupid... I used cannibis ay a young age and I'm pretty smart..no genius but cannibis never made me stupid.... Maybe if you were a heavy user of it but used the right way that's not true...cannibis has helped me very much in what I go through with my NF..and in greatful to it....if you have any questions I'll answer the best I canDanhttps://www.blogger.com/profile/03430218450042800725noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-51412439263289807562015-08-30T20:34:29.964-06:002015-08-30T20:34:29.964-06:00Hey Brenda I have NF1 i use medical cannabis and i...Hey Brenda I have NF1 i use medical cannabis and it helps me immensely... I have paid from my tumors and it helps with the pain....it does also slow the growth of tumors and depending on certain ways you use it..it can shrink them... I have some that grow and show on the outside of my body and used oils and they have shrank in size... It's not true that it makes you stupid... I used cannibis ay a young age and I'm pretty smart..no genius but cannibis never made me stupid.... Maybe if you were a heavy user of it but used the right way that's not true...cannibis has helped me very much in what I go through with my NF..and in greatful to it....if you have any questions I'll answer the best I canDanhttps://www.blogger.com/profile/03430218450042800725noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-68961638317283320842015-03-14T15:57:37.209-06:002015-03-14T15:57:37.209-06:00Is anybody still reading this? I would like some i...Is anybody still reading this? I would like some info. and knowledge of your experience with NF and pot. Thanks. My daughter is 16, has NF1, two optic gliomas . wonder if it's true if it helps the tumors not grow. she is not in pain. My problem with pot for use in such a young age is it makes you stupid. makes your grades not so great, unless your a genius or somethingbrendahttps://www.blogger.com/profile/09727526159261834761noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-49031199059644891882015-01-11T23:58:19.687-07:002015-01-11T23:58:19.687-07:00I have NF 1 I have 7 brain tumors will it work for...I have NF 1 I have 7 brain tumors will it work for me?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-60764964643162742442014-08-06T09:49:06.908-06:002014-08-06T09:49:06.908-06:00I,m 50 years old, female and have a severe case of...I,m 50 years old, female and have a severe case of nf1. pulmonary issues, nf lung, liver, kidney, heart involvement, essential hbp, nf related spine conditions, internal tumors of head and neck, breast, limbs, spine, and so on. pelvic tumors pelvic bones cysts, false joint problems.severe full body pain,etc,etc. yes, I use medical cannabis(I have a license to do so). I was told I would be buried by 34 years old.I truly believe if I would have went on the meds the docs wanted me on so many years ago , yes, maybe I would have expired around that age. I've used mmj everyday since the age of 20,also smoked a little at younger ages.true it does not take the pain completely away but does dramaticly ease it.i take no meds for any other of my symptoms, cannabis deals with all that for me too..i do believe its a safe alternative and is a far better choice than the poisons the phamasudical companys deal to society...I also believe because of the severty of my illnesses if I was to stop using mmj tomorrow. wether I went on society excepted drugs then or nothing at all I would be dead in less than a year. after all GOD created, it can be pulled straight from the ground and used in so many ways for so many good things. phamys are created by man that wanna play god. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-28844510854103094372014-07-04T22:42:19.142-06:002014-07-04T22:42:19.142-06:00Pain free. Pain free. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-40758481548197357092014-01-28T18:34:08.865-07:002014-01-28T18:34:08.865-07:00there is a blog spot in which a family whos child ...there is a blog spot in which a family whos child has tuberous sclerosis that gave the kid medical marajuana to help with seizures TS is a similar diseases to NFw fordnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-6255659236123925942014-01-26T15:20:43.110-07:002014-01-26T15:20:43.110-07:00Thanks for writing this. I'm advocating for it...Thanks for writing this. I'm advocating for it in Florida. I dystonia and it is supposed to help the muscle spasms and pain, and of course I'd like it available for my son who has NF1 if he wants to use it in the future.Maryahttp://www.suncoastmomma.comnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-62816227839327527132014-01-24T11:06:28.350-07:002014-01-24T11:06:28.350-07:00I was born with NF1, i am 25 and been smoking Ganj...I was born with NF1, i am 25 and been smoking Ganja from i was 13, i do think it helps prevent the rapid growth of the tumors and somewhat ease the pain, my nerve pains just started a year ago in my left arm its horrible and Ganja does help somewhat to not make the pain as intense, i live in Jamaica so Marijuana is everywhere n easy to get, but still illegal.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-293172695257767422014-01-23T07:50:10.817-07:002014-01-23T07:50:10.817-07:00I'd like to get high with you.I'd like to get high with you.Anonymousnoreply@blogger.com