tag:blogger.com,1999:blog-6432747512136647685.post932976684040800208..comments2024-03-21T20:44:46.883-06:00Comments on Thriving with Neurofibromatosis: Seriously?!NF Mommyhttp://www.blogger.com/profile/13559650798413176925noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6432747512136647685.post-87171052557016156122012-09-11T13:26:40.593-06:002012-09-11T13:26:40.593-06:00that's very kind :)that's very kind :)Ms. Kissyhttps://www.blogger.com/profile/18208533697775623138noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-68577940452371822582012-09-06T19:14:02.799-06:002012-09-06T19:14:02.799-06:00Anyone up for a gift card slam on this family? A ...Anyone up for a gift card slam on this family? A gift card slam just means u buy gift cards to all kinds of places and send them annoymously to a family in need. Grocery store, restaurants, gas etc......<br /><br />Please lets do this. Kristi inbox me your address<br /><br />Kmartin@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-38941592592566918792012-09-06T18:59:26.243-06:002012-09-06T18:59:26.243-06:00Well this news just sucks! I don't really hav...Well this news just sucks! I don't really have a better way to say it then that. I'm so sorry to hear that Bailey is now going through this too with everything else she has already experienced.<br /><br />Hopefully it isn't so painful that you all won't be joining us at the NF Walk on Sunday! We've been working hard to make it the best one we've had yet. Hope to see you there!! :)Juliehttps://www.blogger.com/profile/00661681708720437966noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-80599384992792859402012-09-05T15:57:26.503-06:002012-09-05T15:57:26.503-06:00Omg Kristy I'm in tears of fear of anger of id...Omg Kristy I'm in tears of fear of anger of idk what else. This reading this made me get so more nervous and scared and mad. My lil princess had an MRI about 2 months ago and disk disease came up. They said it was very very veryyy little that they don't know how the MRI picked up on it. They were shocked at her having it since it is a elderly diseases. I asked if it had to do with Nf and they said no. I am scared the same pain Bailey has, I'm scared my daughter will later get it. I hope you don't mind me bringing Bailey up in my next Dr visit to children's. Thank you for sharing your stories. If it wasn't for this blogg I would have tought my daughter would have never gotten pain. I take Nf serious, I really do I just now think the disk diseases is related to Nf and now I see how serious disk diseases is. What a beautiful scary confusing world we live in.Boogie Chavezhttps://www.blogger.com/profile/04905577374718405034noreply@blogger.comtag:blogger.com,1999:blog-6432747512136647685.post-87793678895421553612012-09-05T14:28:54.284-06:002012-09-05T14:28:54.284-06:00I am in AWE of you Kristy. You truly are inspirat...I am in AWE of you Kristy. You truly are inspirational and amazing! NOTHING will stop you! (or your daughter)<br />You and your blog have helped me to stop pitying myself. I appreciate you helping to teach me how to THRIVE.<br /><br />I'm praying for you and your family!Anonymousnoreply@blogger.com