Rachel is my 7 yr old fiesty ball of emotion. She was diagnosed with Neurofibromatosis type 1, about 6 months after birth. I recognized it, before any of the doctors...and since I grew up knowing about NF, there was no question that she would my 3rd child to be diagnosed.
It wasn't a huge or crushing blow when the doctors said to me that they thought she had NF, I knew basically what to expect, and I was ready for whatever came our way.
The thing that baffled me was that, not a single doctor looked to me, for the possible reason 3 of my children had NF. Being truly in denial about my own issues, I was able to "fool" a lot of people.
I knew about my NF....but I wasn't keyed into the whole complicated mess and problems that we would soon be faced with.
The reason for this blog is to yet again state that I am no different than anyone else. I have wants/desires just as much as the next person. My children are my entire life....I live and breathe because THEY live and breathe.
Those who question my choices in having children have every right to question me. If fact, bring it on! But to publicly bash and humiliate me for my choice is where I draw the line!
MY SIX children are living HAPPY and FULLFILLED lives....and anyone who comes into my home will see that. My choice in having a large family was the choice OUR family made, and to try to bring me down and feel like crap for it, is something I will not put up with.
Each one of my children is dealing with some kind of issue...shall I not have children, because of the possibility of something going wrong?
If your choice is to not have children, I respect and appreciate your decision--I please ask that respect and appreciate mine.
Meet my children:
ALL of these kids were meant to be! Part of life, is sometimes fighting like hell in what you believe in. I believe in LIVING---I believe in THRIVING, anyone who knocks me for that, is in for the fight of their life!
Kristi, who the hell has the right to question you about your children!? That's crazy talk. it's NF moms like you that are the little voice that says "Well, THEY have kids, they have NF, and so do their kids, and they are all great" that let me think it will be okay to have kids if I choose to.
ReplyDeleteWho knows, by the time your kids grow up and I start to have kids, maybe this NF thing will be treatable!
Krissy, are people asking you or questioning you about the decision to have children? Should MY parents have not had children as I am a spontaneous mutation?
ReplyDeleteIt was on FB....the post and the person been removed -
ReplyDeleteWhat a stupid, pig ignorant halfwit that person is/was, Kristi.
ReplyDeleteIgnore the waste of space, it's only an oxygen thief trying to make you feel as miserable as what it does.
Obviously this person is clueless. If you have not already done so, delete her from your "friends" list. You do not need someone so simpleminded being called a friend. Kristi, why did she request your friendship in the first place?
ReplyDeleteI would put no more faith in her than I would in a stewed prune.
You would be better as strangers than as friends.
She probably uses statistics as a drunken man uses lamp-posts for support rather than illumination.
She modest little person, with much to be modest about.
She most likely has never been known to use a word that might send a reader to the dictionary
I can go on, but I believe my point is made.
signed,
President of Kristi's Fan Club
WOW -- U guys rock! One of the many reasons I THRIVE!
ReplyDeleteKristi... finding your blog was the gift I needed as an unaffected mom of a son with NF. His NF was spontaneous, an unwelcome diagnosis for obvious reasons, but would I choose to not have him if it meant not having NF in our lives?... never!!! He's amazing, unconditionally loved and valued for the individual he is, lumps, complications and all. You help me understand what he lives with in a way I'm not able to on my own because I don't have NF. You help make me a better parent for him. Your willingness to share your choice to LIVE and THRIVE with NF and the opportunity to see your family thrive with NF too, is truly a gift! Thank you!!!
ReplyDelete