I have been actually doing A LOT of talking about Neurofibromatosis lately....and THIS is a good thing! Three years ago, I would NEVER ever talk about NF...and most especially about how NF makes me feel!
I feel freer than I ever have before in my life, and sometimes this feeling scares me. But mostly it makes me feel confident that I can handle whatever comes my way. I mean, if one can accept having a life-long progressive disorder, that can shift and transform your appearance, one can handle anything...right?
I like to think of myself as standing on a mountaintop. The climb of a lifetime was steep and treacherous and I have many many deep wounds from this climb, but as I reached the top, the climb got easier, and I felt less lonesome.
What I realized during my "climb" was that I was never alone, even though it felt like that.
I know accepting NF is not an easy thing to do...heck it took me 33 yrs before I was really able to say, with any type of confidence that I had it. But it IS important that if you are living with NF, to accept it. It's only then, when you can begin to THRIVE.
God Bless you for accepting it after 33. It has taken me a good 40 to 44 to come to terms with everything.
ReplyDelete