We've been doing chemo for almost a year now and have gotten used to the routine:
Chemo on Fridays
Feel Good Saturday
Feel Like Crap Sunday, Monday, Tuesday, Wednesday
Start Feeling Better on Thursday
Then...
Start it ALL OVER AGAIN....
Low Blood Counts or "Neutropenia" - Means the neurtrophils or white blood cells are abnormally low. Neutrophils are white blood cells produced in the bone marrow and comprise approximately 60% of the blood.
When receiving chemo, these levels are checked constantly.
I can tell when Bailey's counts are getting really low...
And sure enough, the blood test showed this on Friday.
Signs of Low Counts
*Extreme Fatigue
*Weak and Short of Breath
*Dizziness
*Sometimes Fever
*Pale Look to the Face
When Bailey got her blood taken, it was very "runny" and thin...She bled A LOT during accessing...It was then that I knew, even before the results came back, that her counts were going to be low.
But...They weren't low enough to cancel chemo. There is a range the doctors follow and Bailey didn't quite fall below that line. (I almost wish she had...just so she can get a chance to recover from this nasty stuff)
We have another month round of chemo...Then we will stop, and monitor Bailey's tumors every 3 months.
Bailey says she's excited to get her port removed and not have to deal with all these appnts. I have to admit, I'm excited about that part too.
Even When We're Tired....Even When We Don't Feel Well....
THRIVE ON!
Just checking in to let you know that I have Bailey in my prayers. Praying for healing and strength.
ReplyDeleteShe is such a tough cookie!!! What a brave resiliant soul Bailey is. Can wait till 3 month monitoring time!!! Go young lady!! Hugs from your YAPS pen pal Fenley, sis Lydia and mom patti from Louisville, ky
ReplyDeleteI have been following your journey on this blog as a silent observer...But I wanted to take the time today to tell you that I think your outlook on your life with Neurofibromatosis is AMAZING!
ReplyDeleteYou deserve some recognition for this positive attitude and I hope that one day, you get it!
I have NF1, and live a life of sheltered, non-existence. I seldom think a positive thought about how NF has affected me and often become overwhelmed at the "what-ifs".
Then...I come here (to your blog) and see a smiling beautiful woman, with six amazing children. I am impressed and inspired by you...As are MANY people, I am sure!
Thank you Kristi, for shining a light on my darkened path.
YOU ARE AMAZING!