Insurance Woes

FINALLY - Some time where I can reflect on the last week!

When people ask how I'm doing, I generally say that I'm fine.  And I AM fine...But I'm also angry that we live in a world where much needed treatment is "denied" by pencil pushers who have no idea how important this treatment is to someone.

I'm exhausted at the continual battle.  I'm frustrated that our family faces one thing after another.  I'm sad that there is nothing I can do, to help my daughter.

I can see denying a tummy tuck, or breast enlargement....Insurance should not cover those things anyway...But to deny my daughter chemotherapy treatment, is just ridiculous.

Bailey had her port removed on Thursday and we were set to start her new round of chemotherapy on Friday.  But when we got to the hospital, we were told that insurance has denied coverage of this new treatment.

So...What are we going to do now?  FIGHT.  I am used to fighting for what I feel is best and I don't plan on stopping.  I will FIGHT until the insurance company says YES.  I will FIGHT until my daughter is healed....Then, I will continue to FIGHT until I take my last breath.

That's part of 'Thriving'....It's has become who I am...and what I live for!

Thrive On!

Insurance and Neurofibromatosis

A few weeks ago, when I went to my mail box...I got a surprise letter, that stated that my daughter Bailey, was no longer eligible for medical coverage.

The letter stated that as of March of last year, my daughter did not qualify for coverage...My mind immediately goes to the date we discovered that Bailey  had another brain tumor...A tumor that required immediate surgery and chemotherapy.

According to the letter...NONE of Bailey's MRI's, Surgeries, chemotherapy treatments, hospital stays--NOTHING, was covered by her insurance. (Nice of them to let us know, a year after the fact-eh?)

As you might imagine, I kinda freaked out.  THIS was the whole reason I applied and was approved for disability for Bailey....To AVOID insurance issues like this one!

I immediately called the phone number on the letter, and left a message.

A day later, I get a call back from the Social Security - Medicaid office...This woman had investigated our case and informed me that a state-wide "glitch" had occurred and thousands had received a similar letter.

The woman on the other end of the phone had no idea of how much stress this had caused me.  My mind tried to add up an estimated cost of the 10+ MRI's, Chemo treatments, surgery and hospital stays...When I got to over a MILLION dollars, I stopped trying to add.

I hung up the phone and breathed a sigh of relief.  But....What if I hadn't called?  Would the issue had just worked itself out?  Could I have saved myself the stress and worry, and just ignored the letter?

Yeah...I could have.  But "ignoring" has been what I had been doing, for most of my life.  Ignoring everything about Neurofibromatosis; it's symptoms, warning signs and most importantly, I ignored a world that needed to open its eyes and be educated about this complicated condition.

Taking ACTION, is part of the E.A.S.Y. way to THRIVE!  Explained in my book 'Thriving with Neurofibromatosis'....You cannot THRIVE, without ACTION!  When you live A Thriving Life...it means your attitude and actions radiate in everything you do.

Don't Ignore...Take Action
THRIVE ON!

http://www.thrivingwithnf.com/thrivingwithNFbook.htm