I have written a story about my life, growing up around Neurofibromatosis. Not being diagnosed until an adult, I talk about dealing with symptoms as a child that had no answer.
The story centers around my family; Their symptoms as well as finally realizing that my attitude about NF needed to change. The fear of realizing I was suffering from the same disorder my brother and mother was a crushing blow.
This fear had me hiding for far to long.
'Thriving with Neurofibromatosis' was born because I realized that 'Hiding with Neurofibromatosis' was not helping anyone....
I hope you are inspired by the stories in this book . I hope that it helps you or a loved one
THRIVE with NF
******Book will be sent --and signed in mid/late December*******