When I am asked to speak about Neurofibromatosis....There really is no hesitation to saying YES. It's my thing. I feel great doing it...Even when the nerves are overwhelming.
This last speaking engagement was awesome. I met Erin through e-mail, after she reached out to me to tell me she had read my book.
Erin and her family are dealing with a diagnosis of NF in Giorgio, who is almost 10.
I was asked to come out to speak at their event and I could not have been more thrilled!
It's ALWAYS an honor when someone reaches out to me, based on my story, and how I choose to live my life, even while facing the uncertainty that comes with living with Neurofibromatosis.
So now that I had been asked to speak....I needed to get moving on my message!!
My message always revolves around THRIVING with Neurofibromatosis....But I Tweak it, based on who I am talking to....
This is when being married to a speaking coach pays off BIG TIME!!
Rich helped me fine tune my message and even got me to attend a Toastmaster meeting to practice my speech in front of a live audience!
Erin and her family invited me to their home in New York, which was so warm and inviting...I felt right at home!
The next morning, we all took a private plane to Pennsylvania
I had so much fun playing games with the kids during the flight :) And they were a good distraction for me, since I was scared of the whole "private plane" thing. :)
I was able to see where the event was being held....And where I'd be standing to give my talk. It was a little intimidating.
The whole even was a success - And raised over $200,000 for NF! I was so happy to raise awareness for Neurofiibromatosis, in a positive and encouraging way!
Thank you Borzellino family for inviting me into your home and your hearts! It was truly an honor to be a part of something so successful!
Please stay tuned to PART 2....Where I will talk more about my speech....And what this event was all about....I may even post a video!!