I am so grateful to have my book out, and for others to be reading my journey. It feels kinda weird though, that I now have more close friends than I could have ever imagined. I have gotten a lot of good responses, from those who relate closely to what I have experienced....and that to me, is both awesome and sad.
Why does Neurofibromatosis bring with it such loneliness and sadness? Why are there so many people out there who are suffering in silence?
The book is just the beginning of my Thriving Life...I have much more planned. But getting there has been a terribly rough road....and there are times when I don't think I can do it anymore....Times when I don't want to do it.
As my son enters puberty....NF is taking a cruel swing at his young body. I feel like David must've felt as he went up against Goliath. Against all odds, David defeated his giant foe. But what must David have felt? Surely there was a time where the battle seemed hopeless.
I'm scared for Braden. When I got the news of the MRI....all I wanted to do was to breakdown and cry. Questioning the heavens with why this was happening to him, when just a year ago his MRI was “stable”.
Everything happens for a reason? Really? What is the reason for tumors that are forming on my sons spine? What am I going to “learn” from my sons Optic Nerve being damaged?
I keep repeating in my mind “Thrive Kristi Thrive”. The bar has been set....and now I have something to live up to....people counting on me.
Attitude +Actions= Thriving.
It's time to step up my game. To not give in to this. To continue to fight, even when the battle seems hopeless.