Wednesday, October 28, 2015

Giorgio Foundation Part 1


When I am asked to speak about Neurofibromatosis....There really is no hesitation to saying YES.  It's my thing.  I feel great doing it...Even when the nerves are overwhelming.

This last speaking engagement was awesome.  I met Erin through e-mail, after she reached out to me to tell me she had read my book.

Erin and her family are dealing with a diagnosis of NF in Giorgio, who is almost 10.

I was asked to come out to speak at their event and I could not have been more thrilled!

It's ALWAYS an honor when someone reaches out to me, based on my story, and how I choose to live my life, even while facing the uncertainty that comes with living with Neurofibromatosis.

So now that I had been asked to speak....I needed to get moving on my message!!

My message always revolves around THRIVING with Neurofibromatosis....But I Tweak it, based on who I am talking to....

This is when being married to a speaking coach pays off BIG TIME!!

Rich helped me fine tune my message and even got me to attend a Toastmaster meeting to practice my speech in front of a live audience!


I have to say....The more I do this speaking thing....The easier it gets, and the more confident I become!!

Erin and her family invited me to their home in New York, which was so warm and inviting...I felt right at home!

The next morning, we all took a private plane to Pennsylvania


I had so much fun playing games with the kids during the flight  :)  And they were a good distraction for me, since I was scared of the whole "private plane" thing. :)



I was able to see where the event was being held....And where I'd be standing to give my talk.  It was a little intimidating.



video



 But I did it.  It felt GREAT!  This was by FAR the largest crowd I have ever been in front of!  Having people come up to me after, was the best part.

The whole even was a success - And raised over $200,000 for NF!  I was so happy to raise awareness for Neurofiibromatosis, in a positive and encouraging way!

Thank you Borzellino family for inviting me into your home and your hearts!  It was truly an honor to be a part of something so successful!

Please stay tuned to PART 2....Where I will talk more about my speech....And what this event was all about....I may even post a video!!

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