Showing posts with label tumors optic glioma. Show all posts
Showing posts with label tumors optic glioma. Show all posts

Tuesday, September 10, 2013

Another Rare Tumor?



I'm not really sure how to begin this blog post, because I am still processing our long day at the eye clinic.  Lots of long words were thrown at me, and I literally had one of the many doctors we saw write what he had told me down on a piece of paper.

What is it with doctors and their messy, short-hand scribbling?

I couldn't read the writing, so the nurse was awesome and re-wrote it--Thank Goodness!

There is an abbreviated term for what the doctors are thinking Braden is dealing with.  CHRRPE (gosh, even the abbreviation is long.)

Combined Harmatoma of the Retina and the Retinal Pigment Epithelium.  *Whew*

Basically this is a "rare" (yay for us...NOT) type of lesion or tumor of the macula. (The back part of the eye that is responsible for central vision)

We were told that Braden would need eye checks every six weeks, to monitor his vision, because once vision problems happen, it can very quickly take his vision and can very possibly turn into cancer.

It was a lot to take in...But we were thankful and comforted by these very attentive doctors...who told me, that this type of condition is often missed by general eye exams.

For Braden, he has this way of "checking-out", when things get complicated or overwhelming, which - in this case, is a blessing.  All he was worried about, was that it was 2pm, and he hadn't had lunch yet.

We stopped at McDonald's before heading home, and I let him choose ANYTHING from the menu.....A #2- "large-sized".....which he gratefully inhaled.  

Where has the time gone, where Happy Meals were all he wanted?


THRIVE ON!