Tuesday, December 15, 2009

The Grinch

Turn it Around Tuesday

Who was 'The Grinch'? A Who down in Whoville who was born a little different? Someone with good intentions, who only became bad after he was treated so poorly?

I watch this movie several times a year (thanks to my children) and always take the side of The Grinch.

I remember a time in school, when my hair was cut short and permed...on top of the fact I was a short, chubby tomboy! I walked into the classroom and tried to hold my head up high. But it didn't matter...The kids laughed and pointed at me. I ran out of the classroom that day, determined to never go back.

The Grinch ran away too. To the mountain tops in Whoville and became a scary legend. A Who, who would never fit in. I can't help but feel sorry for him. But that's where The Grinch seems "happy" (I would be happy there too, just to get away from everyone). I have had to deal with people making fun of me my entire life. Being stuck in the real world - I DID go back to school versus hauling myself away into the Santa Monica Mountains!

The Grinch learns, (thanks to the insight of Cindy Lou), that he doesn't have to be bad. Cindy Lou teaches the whole town to see The Grinch as a "Who", not as someone who is a green and grumpy misfit, but only after she teaches The Grinch to see himself as a "Who" first as well. Once he stops stepping on others in retaliation for their stepping on him, he turns around and saves Christmas after all (nevermind that HE was the reason Christmas needed saving in the first place). The town embraces their new citizen and the spirit of Christmas is learned by one and all.

I wish it were that easy. But it doesn't have to be THAT hard. Who teaches us to make fun of things that are different? Does it feel good, to tear someone else down? It must, right? Or we wouldn't do it? Face it, it's easier to make yourself taller when you step on other people. That's the lesson learned by bullies of all ages.

Whether you've been bullied, have been a bully, or both (and haven't we all been both, at one point or another), the real solution comes in a change of thinking. When you step on others to get to the top, you're alone on your plateau, which is only exciting for a short time. When you choose instead to give as many people around you a step up, you have that many more people willing to pull you up with them in thanks. Instead of hiding alone in false triumph, you are able to party with many, knowing YOU have made a difference.

Call it the Christmas Spirit, or the Thriving Spirit - now is the time for all of us to give each other a boost up. Are you joining the party?

Happy Holidays!!

Sunday, December 13, 2009

I want to be like you....

My 13 year old daughter looked at me, after I told her I was going back to NIH (National Institute of Health) -- "I wish I had NF, like you, so that I could go with you."

Her eyes filled with tears and I just hugged her.

She had no idea what she was really saying, she just wanted to be close to me. But her words melted my heart.

What frustrates me is that she DOES have NF - but like me at her age, she doesn't appear to have any remarkable symptoms other than the cafe au lait spots. Dealing with Rachel and Braden seems easier, since they have specific needs to address, but I battle with getting Bailey fully checked out, for fear of what we might find.

It may sound stupid coming from someone claiming to 'Thrive with NF', but I battle with the same sense of denial about Bailey that I battled with for years about myself.

We've got her scheduled next year for some initial tests, and hope to get some answers. I know she has NF, and I've told her she does. It's time for both of us to discover what that will mean to her future health, instead of hanging on to the hope that it'll just go away.

Thriving isn't easy. It isn't always consistent. It's a goal to live up to - an attitude that must be reinforced. The nice thing about Thriving, though, is that even when you fall off the wagon for a day, or create a blind spot in your journey, all you have to do is take a new action to get right back into the zone.

I pray Bailey never has to go to NIH, or deal with the many issues I and so many of you struggle with every day. But if she does, I want her to know that I AM here for her - eyes wide open and Thriving attitude in place.

Are YOU Thriving today?

Saturday, December 12, 2009

Christmas Party!

We went to the church Christmas party today. I'm always amazed with the folks that put these kind of things on. It was very organized and the kids had a blast!

Santa Claus came to visit and the kids all got to sit on his lap. Riker told me that he didn't need to tell this Santa what he wanted, because he had already written Santa an e-mail. :)

Brooklyn kept her distance, but kept spying Santa from behind a chair, or from behind my legs. We kind of forced Brook up onto Santa's lap, and she wasn't too happy about that.


Sorry Brooklyn, but it's tradition! :)

Braden thought Santa was really nice!

"Geez, Mom....Aren't I a little big to go on Santa's lap?"

Rachel loved Santa!

Thursday, December 10, 2009

Freaky Friday

O Holy Night
sung by Eric Cartman

As promised, here is another 'Freaky' Christmas song

Happy Holidays
XO