I'll tell you the reason we all seem fine, but first let me stress that medically speaking...We are NOT fine. As of 3 months ago, we are "stable"....But we are far from being CURED or FREE from danger.
Bailey has gone through 16 months of chemotherapy....With NO SUCCESS! (unless you look at chemotherapy as something that prevented Bailey's tumors from growing out of control)
One of Bailey's brain tumors lays extremely close to vital nerves that control hearing, balance and facial muscles. The other, lays so far inside her brain, that Drs have even refused to biopsy it, for fear of brain damage or death.
The thing about Neurofibromatosis is that, a person can appear to be a generally healthy person....But inside the body, the tumors are wreaking havoc. Growing and twisting around vital nerves and organs, cutting off blood supply and much needed oxygen. And because Neurofibromatosis is an unpredictable progressive disorder...We are never "out of the woods".
Now for the reason we seem to be doing so well(medically)-- Despite the FEAR. The FRUSTRATION. The ANXIETY. The WAITING. The "THERE'S NOTHING MORE WE CAN DO". The ROLLER COASTER. The HEARTBREAK. The HOPELESSNESS. We are a family who THRIVES. We have decided, together, to NEVER focus on all the bad stuff.
We have chosen to set an example and have decided to let HOPE, steer us. So when I enter a room and you ask me "How are things going?" And I reply, "Things are good!" Believe it. But also know that behind that "Good"...is a mountain, that we are holding up...And it's only because of our FAITH in God, that the mountain doesn't crumble around us.