Monday, February 29, 2016


I am still coming off my high, from the amazing weekend I had!  I just can't get enough of this stuff! Sometimes I wish, I could just clear my schedule, and do this full-time!


Why can't I...?

I get so pumped up when I am able to share my story with people....AND have my story actually have an impact!  It's an amazing feeling when someone comes up to you, after you do something like this, and have THEM QUOTE YOU!

Words matter.  And I am so blessed to have people who want to hear what I have to say.

It's quite humbling!

My journey in THRIVING with NF....Has been a long, hard, sometimes even painful road....But at the same time, it has been triumphant and satisfying!

I wanted to THANK Desire'e and the entire BCNF group for having me out to your symposium.  I am blessed to have been able to speak and humbled by the response!

I am READY for MORE!


1 comment:

  1. Hey Desiree I have NF 1 as well . I am in my 30s I am married with a 2 year old. We did embryo selections so she wouldn't have it. Feel free to connect with me