I have been actually doing A LOT of talking about Neurofibromatosis lately....and THIS is a good thing! Three years ago, I would NEVER ever talk about NF...and most especially about how NF makes me feel!
I feel freer than I ever have before in my life, and sometimes this feeling scares me. But mostly it makes me feel confident that I can handle whatever comes my way. I mean, if one can accept having a life-long progressive disorder, that can shift and transform your appearance, one can handle anything...right?
I like to think of myself as standing on a mountaintop. The climb of a lifetime was steep and treacherous and I have many many deep wounds from this climb, but as I reached the top, the climb got easier, and I felt less lonesome.
What I realized during my "climb" was that I was never alone, even though it felt like that.
I know accepting NF is not an easy thing to do...heck it took me 33 yrs before I was really able to say, with any type of confidence that I had it. But it IS important that if you are living with NF, to accept it. It's only then, when you can begin to THRIVE.