After doing some research about this disorder, I found it to fit Bailey exactly. My talks with the doctors have also given us a tentative diagnoses. We will get blood and further testing done next week, to confirm.
Honestly, I am feeling extremely overwhelmed. The house is a mess with boxes, and my mind is a mess with worry....and I can't do a darn thing about either of those. (Telling me to worry less, is like telling a fish not to swim)
On a good note...I am now down 22 pounds after almost a month on low carb.....at least I have that going for me--eh?
I can't wait to move....I just want it over and done with!
As for the Neurofibromatosis, brain surgery, urologist, ophthalmologist, blood tests and all the other medical stuff....It will just have to be on hold, until after the move.