Friday, October 7, 2011

Pictures of Neurofibromatosis

I wanted to thank all my wonderful NF friends for contributing pictures to this slide show.  I hope this brings awareness to a condition that is WAY under talked about!

To parents of newly diagnosed children, the pictures in this video show people mildly affected (which is typical) and people with more severe issues.  No one can predict how severe or mild your case will be.  The best treatment for Neurofibromatosis is to find good doctors, who understand Neurofibromatosis and who also listen to your concerns.

Surround yourself with people who will support and accept you...
And NEVER let Neurofibromatosis be something that defines you. 

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