Friday, November 23, 2012

Thankfully Angry


Photo: A lovely Thanksgiving blood draw

Does that even make sense?  Thankfully angry?  This mix of emotions has me confused too...But it's the best way I can describe how I feel.

I am THANKFUL that we aren't dealing with worse...Even though what we have, is pretty bad.  I know that things-could-always-be-worse.

But I am angry that we are dealing with a monster that has no weak spot.  No vulnerabilities.  I am tired of hearing "Nothing can be done"....I am tired of continually feeling helpless.

Our appointment obviously didn't go well.  New Xrays of Bailey's back showed worsening of the degenerative disk disease and also showed many stress fractures.  We were asked over and over, if Bailey has had any trauma to her back...Which she hasn't....So this makes ANY explanation impossible.

In 2 weeks, Bailey will have a MRI of her back, to hopefully get a better look....

This Thanksgiving we have so much to be THANKFUL for....It's these things that we will focus on as we wait for answers....and maybe some treatment.

THRIVE ON!

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  6. Hope your daughter gets well. By the way by degenerative disk do you mean scoliosis of some kind? I have scoliosis caused by my nf and had a back xray a few days ago and my xray look worse than I thought my scoiolsis was.

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    Replies
    1. No. DDD is completely different than scoliosis. Although she has that too.

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