Monday, February 2, 2015

Video Blog Monday!

2015 has gotten off to a very busy start....I have so many goals for this year!  One of those goals is to get myself out speaking about Neurofibromatosis...So to kick that goal off, I wanted to start a weekly VIDEO BLOG!

I've done this before...But "things" always seem to get in the way -

Please respond as to what you would like to see in my video blog....Any questions you have? I need IDEAS so that I can keep this going :)


  1. You shuld include your kids in a video and talk about what is happening with each one. i like the 1 vid u did when u went to the hospital and showed the blood draw and chemo. your kids are so happy and cute and that is bcuz u show them a good example. you are a good mom and the kids are lucky to have u. u are my sister in NF and i am proud of you.

  2. Congrats to your family. Keep us updated on your NF. Could you vlog about ho your kids are doing like did bailey graduate high school or get a ged. I did at 18 a few years ago but a diploma does not equal college. How about your other kids? I a just wondering I see many types of blog and vlogs and how do you post a video to youtube?

  3. I would like to know how kids of age 2 /3 with nf will cope in day care or creches. Want to introduce my little one who is getting 3 but he cried the whole 45 min the one day i took him. Blocked his ears with his hands. He is seeing a occupational therapist. Please give advice.