Monday, February 2, 2015

Video Blog Monday!


2015 has gotten off to a very busy start....I have so many goals for this year!  One of those goals is to get myself out speaking about Neurofibromatosis...So to kick that goal off, I wanted to start a weekly VIDEO BLOG!

I've done this before...But "things" always seem to get in the way -

Please respond as to what you would like to see in my video blog....Any questions you have? I need IDEAS so that I can keep this going :)


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3 comments:

  1. AnonymousFebruary 3, 2015 at 8:47 AM

    You shuld include your kids in a video and talk about what is happening with each one. i like the 1 vid u did when u went to the hospital and showed the blood draw and chemo. your kids are so happy and cute and that is bcuz u show them a good example. you are a good mom and the kids are lucky to have u. u are my sister in NF and i am proud of you.

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  2. willieFebruary 3, 2015 at 7:00 PM

    Congrats to your family. Keep us updated on your NF. Could you vlog about ho your kids are doing like did bailey graduate high school or get a ged. I did at 18 a few years ago but a diploma does not equal college. How about your other kids? I a just wondering I see many types of blog and vlogs and how do you post a video to youtube?

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  3. AnonymousMarch 13, 2015 at 2:24 PM

    I would like to know how kids of age 2 /3 with nf will cope in day care or creches. Want to introduce my little one who is getting 3 but he cried the whole 45 min the one day i took him. Blocked his ears with his hands. He is seeing a occupational therapist. Please give advice.

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