Who is Listening?

Communication is the key to better understanding, right?  I am typically clear with how I try to get people to understand what it is I am saying.  But there are some, who just choose to not even try to understand.

I was referred to an Endocrinologist to further investigate the NF tumors scattered all over my thyroid gland.  These tumors cause no pain, or obvious symptoms, but they are there.

I met with a doctor who is in his 70's.  I could tell right away this man was going to be the type I would have to stand my ground with.  The first words out of his mouth was something about fibromyalgia...."No, not fibromyalgia...."Neuro-fibroma-ma-tosis", I said nice and clear.

He looked very confused.  "You know there's no cure for that?  What exactly were you looking for me to do?"....Uh...gee Doc...Your job, maybe?

I know there is no cure for Neurofibromatosis.  But there is nothing I hate more, than being dismissed, like I am some leper, who just needs to go back home to hide.

Being robbed of hope, from someone who has known me for 2 minutes?  Not gonna happen!

First of all, if you have read any of my previous posts, you know that this kind of attitude from a doctor, doesn't fly with me.

After the doctor said that he couldn't help me....I got up and walked out the door.  He didn't examine me, didn't take any kind of history, or look at any of the MRI, Ultrasound notes....Just simply put no effort in trying to understand me at all.

Sometimes, it takes standing up, and walking away....to get you on the right path. The path to 'Thriving', takes effort...And I know I am worth the journey.  It's time to clear the path of its road blocks, and press on!

As Always--Thrive On!

Negative People!

Negative people are like human black holes.  They sometimes come out of nowhere, then suck the life from everything around them.

They think, "If you are happy and positive, then you must be crazy...or better yet, you're lying."

Living with Neurofibromatosis isn't easy.  I can be the first to tell you that I have often thought that the battle wasn't worth the effort to continue to fight.

I have been criticized and made fun, my entire life, for the choices I have made....How I look, what I wear, how I talk...And now that I am adult, people criticize my choice to have children.

To those people, who continue to spread their own unhappiness with life to people around them...How dare you!  Never once have I judged couples who have a genetic "abnormality" for choosing to start a family. Never once would I allow MY own disdain for life to affect someone I barely know...or heck, even those that are closest to me.

Keep your negativity to yourself....I'm too busy to hear how YOU disapprove of MY choices, that have NOTHING to do with you.  I am too busy living my life, raising my sweet babies, giving them the best life I can.  

I honestly don't need to hear that you feel I should have sterilized myself, as to not keep the dreaded "NF Disease" from continuing on.

I get it....I know sometimes life sucks.....Sometimes things  happen to people that completely destroys their faith....But THAT'S YOU, that's YOUR life....Don't try to destroy MY faith, just because you are so unhappy with yours.