Progressively Different

Neurofibromatosis is a progressive disorder that affects the nervous system.  No two people that are affected, are alike.  This finds people who are diagnosed with NF, feeling hopelessly lost.

One of the first things I did, to bring more awareness for Neurofibromatosis, was to participate in research.  The study was right down my alley.  "Variability with NF in families."

Why is NF so progressively different?  Why, when family members are diagnosed, are their symptoms so varied?

There are no real answers to these questions, which is why it is so important for researchers to have people step up and volunteer  to get a better understanding of this very complex disorder.

What are you doing with your diagnosis?  I know how scary it can be, to live with such unknowns...but why not take a stand?

FROM MY BOOK

The E.A.S.Y. way to THRIVE

EDUCATION

Fear breeds in the unknown....and ignorance lead nowhere.

ACTION

Live, think and breathe a 'Thriving' attitude. 

SHARING

When faced with ignorance or judgement...do not turn away.  Share who you are and what you live with every day.

YIELD 

Yield to the possibility that you can be whoever you choose to be.

Thrive On!