One of the first things I did, to bring more awareness for Neurofibromatosis, was to participate in research. The study was right down my alley. "Variability with NF in families."
Why is NF so progressively different? Why, when family members are diagnosed, are their symptoms so varied?
There are no real answers to these questions, which is why it is so important for researchers to have people step up and volunteer to get a better understanding of this very complex disorder.
What are you doing with your diagnosis? I know how scary it can be, to live with such unknowns...but why not take a stand?
FROM MY BOOK
The E.A.S.Y. way to THRIVE
Fear breeds in the unknown....and ignorance lead nowhere.
Live, think and breathe a 'Thriving' attitude.
When faced with ignorance or judgement...do not turn away. Share who you are and what you live with every day.
Yield to the possibility that you can be whoever you choose to be.