"I accept NF, I know it's part of who I am. Sometimes I'm nervous, but I always try to keep a positive attitude about it." Read updates by clicking the "how does NF affect my kids" tab
"Having NF doesn't bother me much. Sometimes I worry about my mom and sister, but NF is ok." Read more about Braden by clicking on the "how NF affects my kids" tab
Riley says being in a family that is dealing with NF is cool, because it's just like any normal family...And that she gets to learn about a lot of medical procedures. "Sometimes I feel bad, because they have to get MRI's and see a lot of doctors."
"I feel good, I am different and I like that!" Read more about Rachel, by clicking on the "how NF affects my kids" tab
Riker says "I love my family lots and lots! My family is happy and I am happy too. I like to tickle Mommy's bumpy's."
We have two little friends, that came into our lives in 2010. We never could have imagined how close we would become. In 2012...We plan on saying goodbye to these friends!
Click image to read how I went from surviving to Thriving!
I was officially diagnosed with NF when I was 33 yrs old. I grew up watching my Mom and older brother struggle with the symptoms, but never had any real issues until after my own diagnoses. As a child, knew I was different, but no one knew it was because of this disorder. After symptoms began appearing, even I denied that it was in fact NF.... hiding in my fear that it was. It has taken me a long time, to finally accept the diagnoses, and break the cycle of fear and resentment. Instead of just living with NF, I have chosen to THRIVE! Using the fear and turning it into doing something productive and positive!
I wish u and your family a very blessed 2012! You def deserve it!
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