"Why do you have those bumpies on you mama?" My 8 year old daughter wraps her arms around me. "'Cuz I have Neurofibromatosis, sweetie." I tell her. "I know you do, but WHY do you got that?" I snuggle Rachel in close to me and look at her cute little face...Her sweet eyes, look back at me, through bi-focal lenses.
"God sometimes chooses the strongest souls....Ones that HE knows, can handle really difficult things, and He marks them, so that He can tell them apart from everyone else." I explain to her.
"Is that why I got these brown marks all over me?" She asks me. "Yes, sweetie. And God marks everyone in different ways...Some people just have marks that are more noticeable than others."
"When I grow up...I want to be just like you, mama!" "Why is that honey", I ask Rachel. "Cuz your God marks are really pretty!"
I can't medically explain Neurofibromatosis to Rachel...Not yet anyways...But I can help her to believe that no matter what, she is wonderfully and beautifully made by God.