Thursday, May 27, 2010

NF Bracelets!

The school kids all wore a NF bracelet today, each talking about either having Neurofibromatosis, or about their sibling who has it.

Rachel came home talking about giving one of the bracelets to a teacher, who we just found out, has a 2nd grader with NF. "I'm THRIVING with NF, now you can be too!" She said as she handed Mrs. Morlan a blue and green wristband.

"She cried and hugged me" Rachel said. "Why do you think she cried Mama?"

"Because honey, you made her feel good...people cry all the time when they feel good....and sometimes people with NF feel alone and scared....and you helped her know that she ISN'T alone....and she doesn't have to be scared."

Rachel just looked at me.....wrinkled her cute little face....."Well...I'm not scared of NF", then ran away.

Whether you are a 40 yr old with Neurofibromatosis, or a 7 yr old, the bracelets are a great way to start the conversation.....a great way to say you are standing up and overcoming the odds. A reminder that you are NOT alone.


  1. Aww, how sweet. cant wait till i can Fashion mine around town!

  2. My name is Dave Bunting i have NF1 im from the UK how do i get one of these?

    1. To the right...U will find the option to order bracelets :)

  3. I support NF for a cool girl I work with . I have epilepsy and Fibromyalgia, and always been by my side when everyone else hasn't. I hate when people laugh and make fun of disabilities, especially when they have no idea of what we go through. So I support NF, and all the fighters! My name is Frances Greenholtz, I am on Facebook. I am a fighter for my disease, Fibromyalgia.

  4. Cant find the link to order bracelet