Rachel came home talking about giving one of the bracelets to a teacher, who we just found out, has a 2nd grader with NF. "I'm THRIVING with NF, now you can be too!" She said as she handed Mrs. Morlan a blue and green wristband.
"She cried and hugged me" Rachel said. "Why do you think she cried Mama?"
"Because honey, you made her feel good...people cry all the time when they feel good....and sometimes people with NF feel alone and scared....and you helped her know that she ISN'T alone....and she doesn't have to be scared."
Rachel just looked at me.....wrinkled her cute little face....."Well...I'm not scared of NF", then ran away.
Whether you are a 40 yr old with Neurofibromatosis, or a 7 yr old, the bracelets are a great way to start the conversation.....a great way to say you are standing up and overcoming the odds. A reminder that you are NOT alone.