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How does NF affect us?
"I accept NF, I know it's part of who I am. Sometimes I'm nervous, but I always try to keep a positive attitude about it." Read updates by clicking the "how does NF affect my kids" tab
"Having NF doesn't bother me much. Sometimes I worry about my mom and sister, but NF is ok." Read more about Braden by clicking on the "how NF affects my kids" tab
Riley says being in a family that is dealing with NF is cool, because it's just like any normal family...And that she gets to learn about a lot of medical procedures. "Sometimes I feel bad, because they have to get MRI's and see a lot of doctors."
"I feel good, I am different and I like that!" Read more about Rachel, by clicking on the "how NF affects my kids" tab
Riker says "I love my family lots and lots! My family is happy and I am happy too. I like to tickle Mommy's bumpy's."
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Click image to read how I went from surviving to Thriving!
I was officially diagnosed with NF when I was 33 yrs old. I grew up watching my Mom and older brother struggle with the symptoms, but never had any real issues until after my own diagnoses. As a child, knew I was different, but no one knew it was because of this disorder. After symptoms began appearing, even I denied that it was in fact NF.... hiding in my fear that it was. It has taken me a long time, to finally accept the diagnoses, and break the cycle of fear and resentment. Instead of just living with NF, I have chosen to THRIVE! Using the fear and turning it into doing something productive and positive!
THRIVE WEAR
Support NF Research...Buy your THRIVE WEAR! Click the t-shirt for more information!
Some of my Favorite Links
My Favorite Blogs
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pain.2 days ago
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NEW STUFF!!5 weeks ago
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We are the lucky ones.....7 months ago
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Why I miss blogging.11 months ago
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Widget2 years ago
Top Comments
Hi, I ordered two of the NF bracelets about a week and a half ago and I was just wondering about the status of that? Thanks!
ReplyDeleteI send out orders on a weekly basis. Yours was sent out 7 days ago. Please in box me your address, so I can compare it to the one I shipped to. Thanks
DeleteTha lady who does the nf foundation in Cali just gives out lanyards and tshirts no keychains as of yet. Anyway how do I order these ms Hopkins just click on the button or what? I do not get payed untill the first.
ReplyDeleteThe link will take u to pay pal, where u can submit your order. Kambi is the one who receives the payments and ships them out.
DeleteKristi,
ReplyDeleteCan you get your book on nook.
Congrats on the publishment!
Chrissy
My Book is on NOOK through AMAZON :)
Deletesadly Kambi is no longer with us.
ReplyDeleteWhat?? I just talked to Kambi. What does this mean?
Delete