Subscribe to:
Post Comments (Atom)
Friends :)
How does NF affect us?
"I accept NF, I know it's part of who I am. Sometimes I'm nervous, but I always try to keep a positive attitude about it." Read updates by clicking the "how does NF affect my kids" tab
"Having NF doesn't bother me much. Sometimes I worry about my mom and sister, but NF is ok." Read more about Braden by clicking on the "how NF affects my kids" tab
Riley says being in a family that is dealing with NF is cool, because it's just like any normal family...And that she gets to learn about a lot of medical procedures. "Sometimes I feel bad, because they have to get MRI's and see a lot of doctors."
"I feel good, I am different and I like that!" Read more about Rachel, by clicking on the "how NF affects my kids" tab
Riker says "I love my family lots and lots! My family is happy and I am happy too. I like to tickle Mommy's bumpy's."
Community
Feedjit
Follow by Email
Available now
Click image to read how I went from surviving to Thriving!
I was officially diagnosed with NF when I was 33 yrs old. I grew up watching my Mom and older brother struggle with the symptoms, but never had any real issues until after my own diagnoses. As a child, knew I was different, but no one knew it was because of this disorder. After symptoms began appearing, even I denied that it was in fact NF.... hiding in my fear that it was. It has taken me a long time, to finally accept the diagnoses, and break the cycle of fear and resentment. Instead of just living with NF, I have chosen to THRIVE! Using the fear and turning it into doing something productive and positive!
THRIVE WEAR
Support NF Research...Buy your THRIVE WEAR! Click the t-shirt for more information!
Some of my Favorite Links
My Favorite Blogs
-
-
pain.2 days ago
-
NEW STUFF!!5 weeks ago
-
We are the lucky ones.....7 months ago
-
Why I miss blogging.11 months ago
-
Widget2 years ago
Top Comments
My daughter and I each have one of these. We got them last year at the NF walk. We love them! :)
ReplyDeleteCan these be sent to the UK?
ReplyDeleteYep...just order through pay pal and I will ship :)
Delete