I have done a lot of reading (especially lately) and seen articles that refer to Neurofibromatosis as a "Rare Disease"....But...In the SAME article, state that NF is THE MOST COMMON disorder/disease that affects humans....Soo....What is right?
As I researched, I was able to find THIS description of what "Rare Disease" means:
Sounds accurate, when it comes to NF, doesn't it?
When I explain NF to friends or any interested person...I have NEVER once told them that I have a rare disorder called NF....My explanations typically start out with how COMMON NF is...
1 out of 2500 births!
While it IS true -- That NF carries a very HIGH LEVEL of complex symptoms....Maybe, if we took away the "easy out" excuse that NF is rare...and began talking about how common it actually is...Will get more people talking and learning about it...Just Maybe?