Monday, February 29, 2016


I am still coming off my high, from the amazing weekend I had!  I just can't get enough of this stuff! Sometimes I wish, I could just clear my schedule, and do this full-time!


Why can't I...?

I get so pumped up when I am able to share my story with people....AND have my story actually have an impact!  It's an amazing feeling when someone comes up to you, after you do something like this, and have THEM QUOTE YOU!

Words matter.  And I am so blessed to have people who want to hear what I have to say.

It's quite humbling!

My journey in THRIVING with NF....Has been a long, hard, sometimes even painful road....But at the same time, it has been triumphant and satisfying!

I wanted to THANK Desire'e and the entire BCNF group for having me out to your symposium.  I am blessed to have been able to speak and humbled by the response!

I am READY for MORE!


Wednesday, February 24, 2016

Vancouver, I Can't Wait to Meet You

I'm so excited!  In a few days, I will be in Vancouver British Columbia!

I have been invited to share my story about how Neurofibromatosis affects my life, as well as the lives of my children....And how we THRIVE throughout the many UPS and DOWNS of this disorder!

What does THRIVING look like?  I get questions like this all the time.  And my simple answer is this....THRIVING means taking control over your actions.  We all get angry...frustrated....sad...ETC....
But what happens after that...?

Thriving for ME....means I use that energy for something GOOD.  Something POSITIVE.

Try it.

I know it's hard to be positive all the time, when faced with the problems of such a complicated disorder...But, it's not about being positive all the time....It just about changing the way you respond....Changing the way you let things affect you.

This will change the way you are treated...I promise you!

If you act like a victim...You will be treated like a victim.

I don't always have it 'all together'...I have days where I shake my fists at God....But, then...I bounce back and realize my attitude and actions are MY RESPONSIBILITY!

Let's THRIVE together!

Friday, February 5, 2016

Today's Periscope. Thriving Even When You Don't Know What You're Doing!