Monday, December 11, 2017

Kristi Strikes Back

Update on Yoda!

Sometimes, things are not what they appear to be...Have you ever been told that..?  If I believed everything a doctor has told me..I'd probably be living secluded someplace...Never venturing outside.

I had a follow-up with an OB/GYN the other day....Almost exactly a month after a previous doctor diagnosed me with Yoda.  Measuring 9cm at that time, I was told that a hysterectomy was in my near future.

Finally - a reason for the pain.  I wasn't too upset about losing my uterus...I mean I have been blessed so much by it, so the fear I was feeling, wasn't about that...It was just about --well--losing a body part....The body part that had worked so hard for me.

This OB/GYN wanted to perform all her own tests and imaging and we found that the "mass" had grown 2 CM....That's A LOT.  She ordered a biopsy right away...

I was nervous.  Well...more like petrified!

The Dr. gave me a paper napkin and had me undress.

The nurse brought in the instruments...and I sat there for what seemed like hours....

So the doctor comes in...explains the procedure and gets to it....  I'll spare you the gruesome details...

During the biopsy a gush of "water'....What the heck!?!

Long story short....This "MASS" was fluid when a womb fills up with amniotic fluid when there is a baby....But I had no baby....just the fluid...A Blighted Ovum.  No Tumor. 

After another ultrasound showed the "mass" was now gone....the doctor explained how the human body is "freaky"...and does things that can't be explained.

I do still have the "friends" of Yoda....Fibroids...that will be watched...And we will wait for the biopsy to come back before doing anything else.

This is GOOD news.  It made me realize that medicine isn't perfect....Doctors aren't perfect.

Merry Christmas!!

Thursday, December 7, 2017


My dear friends.  This is Yoda. 

And so is THIS.

All 11cm of it.

'My' Yoda however, doesn't have a light saber.  No super powers.  And no wise or prophetic words.

It's a tumor.  A mass destroying my insides.  Making me in severe pain....And I need it GONE!

I first learned about Yoda several weeks ago.  After a VERY slow referral process, I am off to the OB/GYN to figure out how to best deal with Yoda.

I'm praying they just schedule surgery right then and there...I mean why wait...?  But I have this fear, that the DR is going to be like every-other-doctor and tell me that we are going to 'watch-and-wait'....God I hate that phrase.

It either means the DR has NO clue how to handle the situation....OR they have no clue WHAT the situation even is.

With Neurofibromatosis...I can't tell you how many times we have been told "watch and wait"...I mean...What the heck are we waiting for...?

I know I know...Not EVERY tumor is life threatening...And I also know, that for the MOST part, doctors have our best interest at heart....But at the same time....How can we do NOTHING!?!

I'm going in today - EXPECTING something more than 'watch-and-wait'.  I'll demand it, if I have to!

It's all about YOU taking control for YOU. Demand answers if you arent getting them!

I know - that in the end....this will result in a hysterectomy.  And I'm okay with this.  

Yoda...Sorry I am....Go, you MUST!

THrive On!