Several years ago, after our families diagnosis of Neurofibromatosis, we had a choice to make. Run from it....Like my own mother did....Or LEARN from it.
One night, I was sharing in the bath-time fun with my daughter Rachel. She had just come in from outside, and was dirty from head-to-toe! With the bubbles over-flowing the tub, we began to scrub the dirt.
We laughed because the once clean water, became dirty.
After filling the bathtub back up with fresh water and LOTS more bubbles, Rachel noticed the brown spots all over her body.
This was the first time Rachel had asked about the spots....AND the first time I really ever had to explain them to ANYONE.
She tried to wash the spots off with a washcloth and asked why she couldn't wash them away.
In that moment, I knew I wanted to write something about NF....This blog...The book Thriving with NF....And MORE!!
I explained to Rachel, in a simple way....."Those 'spots' are called Cafe' au lait, and you can't wash them away...."
After drying Rachel off, and getting her tucked in for bed....She asked more questions about NF....So sweet -- so innocent.
The IDEA for a children's book was born that night. I wanted something short, sweet and positive. But mostly, easy to understand.
If you are interested in "You can't wash away the Cafe' Au Lait" please go: HERE
The link will take u to AMAZON, where u can download a copy.
Follow little Sammy, as she learns to live with Neurofibromatosis.