I wasn't sure I wanted to go. I mean, I've been kind of out of touch for the last 10 years (probably more) But...
A friend of my husbands had a extra ticket...So I was being nudged to go.
One of the most meaningful parts of these events, is of course connecting with others that are dealing with Neurofibromatosis...But time, life and just general business, has kept me away.
Rachel was able to come with, and I am really glad she did. Going to these types of events can actually make one feel more isolated, even though - It's supposed to do the opposite.
I brought my books with me...But the books are old news, so I was over thinking that as well.
A few hours in....I was thinking about leaving
Then, I met up with a little girl, diagnosed with NF. She was immediately drawn to me and Rachel (something about us being preschool teachers probably had something to do with this)
Her grandma came looking for her and found the little girl, hanging upside down on a chair next to us. We laughed...This reminded me so much of when Rachel would be at Children's Hospital, getting ready for her MRI...So cheerful. So full of excitement.
Rich's friend, Tom, introduced us to each other and mentioned my book..."It's filled with great stories about Kristi's children, who have NF just like her" (pointing to the little girl)
The grandmother perked up and grabbed the book! "I want this...and you have to sign it!"
That feeling...
Started stirring inside me.
I've missed this feeling.
The feeling of making a difference. Even a small one.
A few minutes later...A gentleman was at the booth, looking at my book. Tom told the man "Kristi Hopkins is here, and will sign that for you, if you like" he pointed in my direction...
The man got very emotional...He turned to me to tell me that he was so happy I was there...and that years ago, he had read some of my book and that I was one of the first people that helped him through his diagnosis.
I signed the book, hugged him and we friended each other on social media.
There it was again. The stir...In my belly!
I want to get back out there. I want to help make a difference for those living with NF.
I have a lot to say....and I know what I want to say....Someone needs to hear!
So here I am. Still THRIVING
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