Monday, September 10, 2012

4th Annual Denver NF Walk

Do you ever feel alone having Neurofibromatosis?  I know that there are times when I feel so consumed by everything we are going through....So alone and isolated with all that NF throws at us, that I forget that there is a whole community of NF families out there...Who are going through some of the same stuff we are!

September 9, 2012 was the 4th Annual walk for Neurofibromatosis Awareness. 

You may feel alone, isolated, afraid and angry...But it's only when you step out of those emotions, that you can see a world who suffers with you....And it's when you step out that those emotions and feelings are replaced with HOPE & HAPPINESS!

Social media, like Facebook and message boards are AWESOME....And I have nothing bad to say about them...I use them every single day!  But, if that's as far as you take "reaching out"...You are missing out on a world that is ready to embrace you, and all of the challenges you are facing.

REAL LIFE support groups are ALL around you!  

WWW.CTF.ORG is a great first step in finding a local NF group.  If you don't find one in your area....Contact CTF and ask about what it would take to start a new group.


If you have the will and the motivation -- ANYTHING can happen!




  1. Looks like you all had a great time! Sorry we didn't connect.


  2. We have an nf walk out here in california in november at the santa fe dam in irwindale. How about come sometime info is on PS what did you guys eat at your walk. we just get a boring pancake breafst after the walk.

    1. Pancake breakfast sounds lovely! We had hot dog, chips and soda. I'd love to come to a walk...maybe someday!